I try to make the effects of this stroke minimal on my life, and as a result minimal on the lives of others. Doing so is, in fact, good for me in the acceptance of it. My "bible," if you will, is a book called My Stroke of Insight.
It is by an incredible neurosurgeon named Jill Bolton Taylor, who had a stroke herself and has MORE than survived. She has thrived and has spoken publicly many times about her experience.
It was given to me, I think (one of the effects of a stroke is for it to leave you with a lousy memory) by my lovely mom, who has since died. Amazingly, without a car, she would come and visit me in hospital far away from where she lived.
Here's a few vids, but a warning, they are lengthy. Still, for a complete understanding, I recommend watching them.
http://www.youtube.com/watch?v=QTrJqmKoveU
This is long, more than an hour. I could not watch it all. My little brain gets too tired. Absorbing things of detail and consequence is very difficult. I can fall asleep, for example.
The fact it is an interview by Oprah Winfrey, who likes to hear herself talk, is also a big problem for me. Still, it is incredibly interesting when Ms. Bolte Taylor talks and recounts every second of her experience.
http://www.youtube.com/watch?v=k9Phy9C5Ees
My own experience is not nearly so interesting. I am divorced. I had my kids over at my place as part of a custody arrangement with my ex-wife. I was playing with my son, between kitchen chairs on the floor.
I was about 160 pounds (about 5'10") and in very good visible physical shape, but I smoked, drank, and had a bad diet.
Still, compared to many men my age who are grossly overweight, due to what doctors later said was a hereditary condition, I had a stroke.
When I collapsed, it was like fainting, I imagine. I say that because to my knowledge, I had never before fainted.
My daughter, who was then training to be a nurse (she is now a nurse) called emergency. I was in a coma. I stayed in hospital about 4 months. I obviously eventually came out of the coma.
The right side of my body is now semi-paralysed. I can walk, but very slowly. I cannot drive. My handwriting is very bad. My memory is very bad. By semi-paralysed, I mean I can feel it, but not normally.
It is like being frozen for a dental filling.
I still can perform regular bodily functions without aid.
There IS no doubt I cannot perform some of them AS WELL or as quickly. I can perform them. Life is like I'm in slow-motion, like I'm a snail, and everyone else is moving fast.
Mentally, thankfully, there appears to be little obvious effect. I'm the same arse I always was!
I did not know your mom had passed, Chris. I am so incredibly sorry to hear it. I know how much you loved her and how much she loved you. It's never easy losing a beloved parent. My heart goes out to you. On another subject, I don't know if you remember this, but not long before your stroke (about a week) you recommended that book to me, saying that for some reason, I reminded you of Dr. Taylor. You told me that I really needed to read it, so I ordered it immediately. I received it and read it the day before I heard about your stroke. I guess it's just one of those weird, random things that happen in life. Hugs, Laurie
ReplyDeleteLaurie: Her Winnipeg Free Press obit is still stuck on my fridge. She was just...a lovely, lovely woman. I imagine EVERY son feels that way about his Mom. When I was in hospital for this stroke (4 months), who took the bus and a transfer trip to come out and see me almost every day? I think it was a physical resemblance I was referring to regarding you and Ms. Bolte Taylor, but thanks. Hugs back
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Yeah that book by Ms. Bolte-Taylor was really good Chris; I'm happy to learn about its value to you. I found "The Brain That Changes Itself" by Norman Doidge (http://www.normandoidge.com/normandoidge.com/MAIN.html)to be an equally important book because of what I learned about the brain in general and the therapies/treatments developed by neuroscientists and other specialists in particular. Most notable among these was the constraint-induced therapy techniques developed by Dr. Edward Taub. Truly incredible and effective for people who have suffered from strokes.
ReplyDelete-- Doug
Well thanks Doug! And for the link! I am not very good at reading books because you need sustained mental strength to read them, and I find they eventually put me to sleep -- not because they're boring, but because they require sustained brain attention, and of course my brain is diminished. But definitely, this is great!
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