Saturday, 6 July 2013

The Practical Challenges of a Stroke

I try to make the effects of this stroke minimal on my life, and as a result minimal on the lives of others. Doing so is, in fact, good for me in the acceptance of it. My "bible," if you will, is a book called My Stroke of Insight.

It is by an incredible neurosurgeon named Jill Bolton Taylor, who had a stroke herself and has MORE than survived. She has thrived and has spoken publicly many times about her experience.

It was given to me, I think (one of the effects of a stroke is for it to leave you with a lousy memory) by my lovely mom, who has since died. Amazingly, without a car, she would come and visit me in hospital far away from where she lived.

Here's a few vids, but a warning, they are lengthy. Still, for a complete understanding, I recommend watching them.

http://www.youtube.com/watch?v=QTrJqmKoveU

This is long, more than an hour. I could not watch it all. My little brain gets too tired. Absorbing things of detail and consequence is very difficult. I can fall asleep, for example.

The fact it is an interview by Oprah Winfrey, who likes to hear herself talk, is also a big problem for me. Still, it is incredibly interesting when Ms. Bolte Taylor talks and recounts every second of her experience.

http://www.youtube.com/watch?v=k9Phy9C5Ees

My own experience is not nearly so interesting. I am divorced. I had my kids over at my place as part of a custody arrangement with my ex-wife. I was playing with my son,  between kitchen chairs on the floor.

I was about 160 pounds (about 5'10") and in very good visible physical shape, but I smoked, drank, and had a bad diet.

 Still, compared to many men my age who are grossly overweight, due to what doctors later said was a hereditary condition, I had a stroke.

When I collapsed, it was like fainting, I imagine. I say that because to my knowledge, I had never before fainted.

My daughter, who was then training to be a nurse (she is now a nurse) called emergency. I was in a coma. I stayed in hospital about 4 months. I obviously eventually came out of the coma.

The right side of my body is now semi-paralysed. I can walk, but very slowly. I cannot drive. My handwriting is very bad. My memory is very bad. By semi-paralysed, I mean I can feel it, but not normally.

It is like being frozen for a dental filling.

I still can perform regular bodily functions without aid.

There IS no doubt I cannot perform some of them AS WELL or as quickly. I can perform them. Life is like I'm in slow-motion, like I'm a snail, and everyone else is moving fast.

Mentally, thankfully, there appears to be little obvious effect. I'm the same arse I always was!
 

5 comments:

  1. I did not know your mom had passed, Chris. I am so incredibly sorry to hear it. I know how much you loved her and how much she loved you. It's never easy losing a beloved parent. My heart goes out to you. On another subject, I don't know if you remember this, but not long before your stroke (about a week) you recommended that book to me, saying that for some reason, I reminded you of Dr. Taylor. You told me that I really needed to read it, so I ordered it immediately. I received it and read it the day before I heard about your stroke. I guess it's just one of those weird, random things that happen in life. Hugs, Laurie

    ReplyDelete
    Replies
    1. Laurie: Her Winnipeg Free Press obit is still stuck on my fridge. She was just...a lovely, lovely woman. I imagine EVERY son feels that way about his Mom. When I was in hospital for this stroke (4 months), who took the bus and a transfer trip to come out and see me almost every day? I think it was a physical resemblance I was referring to regarding you and Ms. Bolte Taylor, but thanks. Hugs back
      .

      Delete
  2. Yeah that book by Ms. Bolte-Taylor was really good Chris; I'm happy to learn about its value to you. I found "The Brain That Changes Itself" by Norman Doidge (http://www.normandoidge.com/normandoidge.com/MAIN.html)to be an equally important book because of what I learned about the brain in general and the therapies/treatments developed by neuroscientists and other specialists in particular. Most notable among these was the constraint-induced therapy techniques developed by Dr. Edward Taub. Truly incredible and effective for people who have suffered from strokes.

    -- Doug

    ReplyDelete
    Replies
    1. Well thanks Doug! And for the link! I am not very good at reading books because you need sustained mental strength to read them, and I find they eventually put me to sleep -- not because they're boring, but because they require sustained brain attention, and of course my brain is diminished. But definitely, this is great!

      Delete

Be critical. Disagree, if you want. But don't be abusive.